$1,592.53
Quyen HAND TO HOLD
Quyen
$1,592.53
HAND TO HOLD
Quyen
Quyen

Quyen Ma's page has now expired

677 days ago, Quyen Ma created this page in support of HAND TO HOLD.

With the help of Team Hand to Hold , Quyen Ma gave everything:

  • They posted 5 times.

  • Shared their page with everyone they could.

  • Received 21 donations from generous family and friends.

  • Raised $1,592.53.

My Story

Our twins, Violet and Augustus entered this world in the summer of 2013. Although we expected they would be born early, we did not fully grasp what being a new family in the NICU would look like. We would soon find out. Needless to say it was daunting, at first.

We visited everyday for 10 weeks; I pumped; we ate microwave dinners; and watched as these two little miracles grew stronger and bigger until they could eventually join us at home.

These early struggles taught us about patience...

Our twins, Violet and Augustus entered this world in the summer of 2013. Although we expected they would be born early, we did not fully grasp what being a new family in the NICU would look like. We would soon find out. Needless to say it was daunting, at first.

We visited everyday for 10 weeks; I pumped; we ate microwave dinners; and watched as these two little miracles grew stronger and bigger until they could eventually join us at home.

These early struggles taught us about patience and how to love deeper than we ever thought we could.

At 6 weeks old our daughter was diagnosed with Prader-Willi Syndrome. The diagnosis scared us. However, we learned to move forward and learned what we needed to do to ensure that she would live a quality life, one equal to her brother's (no diagnosis).

When our babies finally came home we had the typical first-time parent insecurities and laughs. In addition, we had a feeding pump, therapy appointments, an apnea monitor, etc. On top of that we had to learn how to drop an NG tube (!!!).

Although we were unsure of what the future would hold for our daughter we learned to be her advocate. We learned how to work on "her time." Sadly, that time would be too short. Violet passed away, unexpectedly, at 8.5 months old.

Her passing shook us more than any diagnosis could. In death as in life, we are her only voice. We continue to talk about her with her younger twin brother and honor her memory. We choose to tell the story of our twins by supporting those organizations that were a part of their lives.

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Team

Team Hand to Hold

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To provide comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs, and those who have experienced a loss due to these or other complications.

Vision

Hand to Hold’s vision is...

To provide comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs, and those who have experienced a loss due to these or other complications.

Vision

Hand to Hold’s vision is to enable a network of families to offer support, comfort and understanding to one another, and to provide them with knowledge, information and resources to reduce the impact of a NICU stay and ensure the best outcome for their children and family by:

*Empowering parents to advocate for their children
*Facilitating peer support and encouraging individual, couple and family counseling when needed
*Educating parents about the challenges their babies might face and preparing them to meet those needs
*Sharing support and resources to help comfort families following a terminal diagnosis or loss of a baby
*Working with healthcare professionals, hospital systems and specialists to ensure families thrive during and after a NICU stay

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Team

Team Hand to Hold

Blob

To provide comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs, and those who have experienced a loss due to these or other complications.

Vision

Hand to Hold’s vision is...

To provide comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs, and those who have experienced a loss due to these or other complications.

Vision

Hand to Hold’s vision is to enable a network of families to offer support, comfort and understanding to one another, and to provide them with knowledge, information and resources to reduce the impact of a NICU stay and ensure the best outcome for their children and family by:

*Empowering parents to advocate for their children
*Facilitating peer support and encouraging individual, couple and family counseling when needed
*Educating parents about the challenges their babies might face and preparing them to meet those needs
*Sharing support and resources to help comfort families following a terminal diagnosis or loss of a baby
*Working with healthcare professionals, hospital systems and specialists to ensure families thrive during and after a NICU stay

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HAND TO HOLD